By Hanratty, B. et al. Health Services & Delivery Research, 2014; 2 (17)
The aim of this study was to understand the experiences, influences and consequences of transitions between settings for older adults at the end of life. Three conditions, heart failure, lung cancer and stroke, were the focus of study, chosen to represent differing disease trajectories.
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By The Royal College of Physicians (2014)
This report has found significant variations in care across hospitals in England. The audit shows that major improvements need to be made to ensure better care for dying people, and better support for their families, carers, friends and those important to them. While previous audits had been based on the goals of care within the Liverpool Care Pathway for the Dying Patient (LCP), the new audit sampled the care of dying people in hospital, regardless of whether they were supported by the LCP or other care pathways or frameworks, and included more hospitals than the previous audits.
By Joseph Rowntree Foundation (2013)
Hundreds of thousands of older people need a great deal of support. This book presents a vision of what life can be like, and should be like, for all of us as we get older. This vision is not unattainable, it is about being recognised as individuals, with our own passions, preferences and interests. It is about having a network of meaningful relationships, about being able to get the right support – no matter where we live. It is about being looked after by staff who are confident, who are able to relate to us and who are appreciated for the work they do. It is about new ideas, but also simple things that can matter a lot, like being able to get outdoors. It is about older people speaking up and driving change.
By The King’s Fund (2013)
This report presents the findings from a two-year research project funded by Aetna and the Aetna Foundation. It aimed to understand the key components of effective strategies employed by studying five UK-based programmes to deliver co-ordinated care for people with long-term and complex needs. It elicits some key lessons and markers for success to help identify how care co-ordination might be transferred from the UK to the US context.
By Public Health England (2013)
This report collates information and intelligence collected by the National End of Life Intelligence Care Network and partners over the last year. Key findings from the report include that the proportion of people dying at home or in care homes increased from 38 per cent in 2008 to 44 per cent in 2012. It also reports large variations in the proportion of deaths in hospital by local authority area, though the reasons for this are complex.
By Macmillan Cancer Support (October 2013)
This report calls for social care to be made free for everyone at the end of life. It found that almost three quarters of cancer patients in England who die in hospital beds wanted to die at home. It sets out new recommendations for improving choice at end of life for cancer patients.
By Together for Short Lives (2013)
This document describes the population of children who need palliative care; the services and professionals who provide it; and recommendations for the commissioning of children’s palliative care within the context of the five stages of commissioning set out by the NHS Institute for Innovation and Improvement.
By The King’s Fund (2013)
The project focuses on five case-study sites that have developed innovative approaches, and this week we publish the results from the first two sites, Midhurst Macmillan Community Specialist Palliative Care Service and the Sandwell Esteem Team.
By Independent Review of the Liverpool Care Pathway (July 2013)
This report sets out recommendations regarding the LCP and end of life care following an independent review chaired by Baroness Julia Neuberger. The recommendations include phasing out the LCP and replacing it with an individual end of life care plan; an end to incentive payments for use of the LCP and other similar approaches; and a new system-wide approach to improving the quality of care for the dying.
By National End of Life Care Programme (November 2012)
This resource pack has been developed to be a practical tool to help GPs identify those patients who may be in their last year of life and talk to them about their preferences. It contains information on: identifying people at the end of life; having end of life care conversations; putting plans in place; managing and co-ordinating care; and space for GPs to include local information such as the telephone numbers of hospices, palliative care teams and pharmacies which stock palliative care drugs.
Click here to view this resource pack